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Thanks for the information. MommytoEli - That's good to hear! I actually love Kaiser for us. No complaints at all. But we're all pretty healthy. But J will likely need a Fontan Procedure for his heart where one of his ventricles is bypassed. It's a delicate surgery and he is immune compromised besides. So I want him at a Children's Hospital because the syndrome has is rare and I would want him to have the most experienced doctors possible!!
Kaiser told me that they didn't think it would be a problem to have him referred back to Children's. I just have to get a doctor to do it. And my SW told me that - contrary to what we had been told for our healthy son - we don't have to switch him. So we'll do one of those two things. Apparently, with a child as sick as J, the rules are a little different.