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My dd is almost 3 and has been unoficially diagnosed as a sensory seeker. She is definitely on the mild side of the spectrum, though. She has her good days and her bad days. On good days, she will do her art project very calmly, share and be the best behaved child in the room. On bad days, she will eat the glue, try to use ALL the supplies at the same time, rub the pom poms all over her legs, jump up and down, not wait her turn, and try to "help" other kids do their project, etc. Today was her observation with CDS. She had a really, really good day. She was perfect. The worker said she saw no issues, except for a little bit of putting things in her mouth. The worker also said that in chaotic environments, sensory seekers will get more wound up and wild. I would think that it would be the opposite. I don't know much about it, but I would think that a chaotic environment would give a sensory seeker the input that they need to settle down. We went to the Rainforest Cafe the other night, and my dd was at peace. She sat still and looked calmly around, excitedly pointing things out, but I could finally eat in peace myself. My question: how would your sensory seekers act in an environment like the Rainforest Cafe?
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in chaotic environments, sensory seekers will get more wound up and wild.
My question: how would your sensory seekers act in an environment like the Rainforest Cafe?
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Well, I just had my family (parents and sibs) over to my house for Mother's Day because going out to a restaurant with a Sensory Seeking 2 year old is not relaxing to me. Does that answer your question?
For the most part, my DD tends to act out in chaos. However, there are times that she will sit back and just watch. When she does that, all he_ _ breaks loose as soon as we hit the car. From what I can tell she is mad at me for taking her into that environment. Then the tantrums come and it takes a while to calm her down.
I am frustrated for you because the observation didn't show what the worker needed to see so that your daughter can get help.
People thought I was crazy because I would say things about DD but she wouldn't act that way around others. However, the Therapist & Behavior Specialist who came out for DD's eval from ECI are both very skilled and nailed the problem on the first visit. Is there someone else who can come out for an observation to get a 2nd opinion?
This was just the observation, thank god. We had the same person come out to our house for the intake (2nd time around; we described her behavior a year earlier and she was released because she was so developmentally advanced and we didn't know about SPDs), and she wanted to see her in as close to a learning environment as possible. She asked if she could come to this activity, which my dd has only been to once before. She has seen my child only on the best behavior all 3 times. The OT friend who did the unoficial diagnosis saw my dd, and immediately said she thinks she is a sensory seeker. She did do the whole evaluation, but we can't use it because she did it as advice to friends. We still have the whole evaluation at their center, where they will do a full evaluation, meaning intelligence, developmental screening, speech, psychological (because of bipolar in her birthmother, seems strange to do on a 2.5 year old), and an OT. I really just want an official diagnosis for her, so that I know for sure. I keep saying that she has some characteristics of sensory seekers, but definitely not the worst ones. She does not have melt-downs, she is easy-going, and she is very rational. She does not get wound up if she is getting the input that she needs. But, if she's not, she will get wound up. Anyway, I was bummed that she didn't see my dd how she normally is. But at least we have the evaluation in about a month.
Oh yes, now I remember your situation. I am glad you followed your Mommy gut and are having her checked out. Like you, I would want her diagnosed so that I know for sure what is going on. How else could you help your little girl?
I am glad it was only an observance and not the official eval.
For the record, my DD will be on her best behavior for people as well. It took several ECI visits before DD felt comfortable enough to show her "real behaviors" to her OT. The first time it happened I said, "Okay, people tell me this is normal 2 year old behavior! Am I crazy or is something off here?" The OT told me in some ways it is 2 year old behavior but that DD takes it to the extreme. She was glad she finally saw the real DD so she can help her.
Please keep us posted on how the eval goes. Good luck! I hope you find the help your daughter needs.
I am now considering cancelling the evaluation. I am starting to question myself now. And I wonder whether my dd will be on her best behavior for that as well. Today, at music class, she was definitely the Katie that I know. She ran in circles, bounced all over, walked on her toes all over the room, spun around, put everything in her mouth, etc. But she wasn't disruptive to anyone else. I'm just considering waiting until she starts preschool, to see whether she is having any issues there. I go back and forth.
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mommytoEli
have you ever video taped her doing these things?
mommytoEli
have you ever video taped her doing these things?
myForeverkids3
That's a good point and probably what I need to do with my 2 yr old. We finally got someone to help with behavior and she came in and played with her the whole time! How is that OBSERVING?????
She said before she left: "Well, I am just not seeing the behaviors that you are talking about." urrrrr
Of course she is an angel when she has someone playing with her one on one and is not asked to do anything that she does not want to do!
Well, I think that that's part of it. The woman we've been dealing with from CDS does not play with my dd. She basically ignores her and talks with me. She is very calm, so my dd just does her own thing. I could videotape her. I think if the therapist at the evaluation plays with her excitedly, my dd will definitely show her true self. I'll just go with it, and if they don't see anything wait until preschool. I just sort of want to be able to tell her preschool teacher that there's a reason that she wants to touch everything and put everything in her mouth, to watch her and not get mad at her :(.
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My son did the same sort of thing. He got into ot because of preschool, daycare, and my reports, but then was the perfect kid who mouthed things (already diagnosed with pica) it wasn't until after about four ot sessions when they let him go into the ball pit and then expected him to be able to follow directions that they saw more of his typical behaviors.