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I just got a new fd who is 18 months. She was born premature at 26 weeks only 1lb 14ouces. She was diagnosed with Hydrocephalas and has a shunt.
What do I need to know? Anything to look out for?
I was not informed of her "diagnosis" of Hydrocephalas. I was just told that she was born premature and is developmentally/physically delayed at about 8-10month level. I was told there were no special instructions or medication or anything like that.
When she got here I noticed her mis-shaped head right away(it was hard not to) I even asked if she had hydrocephalas and the worker told me not that she knew of.
Yet she spent the last week with these kids and with the mom every day. The paperwork she left with me(from her early intervention program) has that diagnosis written all over it. I don't see how she didn't know that....when I took one look at her and thought that was what she had.
Although i know what it looks like....I don't know much about it. Does anyone else have experience with it? anything I should be aware of or concerned about? Any warning signs of possible problems or emergencies?
I'm very excited to have this precious little girl she is so sweet and seems healthy, I'm just concerned that maybe there is something I should know....or something they haven't told me.(like ....not knowing she had hydrocephalas.....PLEASE!!!!)
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I would really question not having any procedures--what if the shut became infected? or something else along those lines. I would think this would be a medically fragile case, but I could be wrong.I would be a little nervous caring for this child without any medical help. Plus, the SW didn't even know she had that condition. So, does she know all the medical history? I would ask more questions if it was me,Happy123
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Thank you for your help!!!
Today was the court hearing and she was returned home.
She was such a precious little girl I will miss her. I think my kids noticed she was special/different because they took to her in such and sweet loving way. Including my little babies, all they wanted to do was give her hugs and hold her hand and love on her!!!
Lili has a shunt and was Hydrocephalic at birth (25 weeks). She is very delayed but is steadily making great improvements and should be walking soon. Your FD probably sees a nuerologist at the local childrens hospital for her shunt revisions and MRI's. I would make an appointment and let them know you are the new FM. They should explain her history and any complications she has had previously. They can also let you know what to look for if infection occurs and answer any questions you have. If you go straight to the source (Dr.) you can get information to calm your fears and better care for her medical needs. It's not a medical procedure so you shouldn't need your SW approval or consent. If she didn't know about the Hydro there might be more she doesn't know....
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We had an appointment scheduled for 2 days from now for a routine ct scan and neurology appointment. But, now her mom will have to bring her to it.
I am happy that she got her back. She was only in care for just over a week. The reason she was in care had nothing to do with her, but once she was in my home I had many concerns come up with possible medical neglect. Medications the mother was supposed to be giving but did not, for one reason or another and various other concerns. Unfortunatly the social worker didn't want to hear any of it, she had her mind set that these kids were going home today after court....and well they did(probably didn't bring up any of my concerns in court!!). So while I am happy that she was returned home I'm still a little concerned for this little girl.