Hi I'm new and have questions...

Hi. I'm Karen. I was just referred to this forum by a friend on another forum. I never knew this one existed, or I'd have been here long ago. My husband has been in the Army for 17 years, and we've been married 13 years. He is in the middle of his second year long tour in Iraq, and hasn't even seen our newly adopted son. We adopted our only child, a baby boy, from Guatemala, and after bringing him home last month I took him the very next week for a wellbaby checkup. The doctor immediately said he has severe plagiocephaly which I was clueless about at that time. She said she would referr me to a specialist for him, and my head was swimming. Then she told me that Tricare will not cover the cost of his treatment. I was confused of course. I thought tricare covered everything. Well, come to find out Tricare considers the treatment for plagiocephaly to be cosmetic and experimental. However, without treatment the specialist said Caleb would have to have major reconstructive intrusive skull and facial surgery as a toddler if not treated now. Basically the back of his head is malformed and flatted on one side, and his brain is growing and pushing to the left which will eventually cause facial malformations and other medical problems including eyesight, hearing and other things. I thank my lucky stars we are catching it before he got any worse, but my problem now is that Tricare will not cover the cost of his treatment. My husband and I are maxed out on adoption loans already and cannot afford much. We are doing what we can, and put Caleb's helmet on a CC that we can't even afford. Now we have to come up with the rest of the payments and still have to pay the CC, and on top of all of that we have had MANY trips to the doctor which is eating up our gas and is a huge expense with the gas prices so high. I'm at my whits end trying to find help for paying the medical bills. I've tried the following so far for help: local media, shriners, Children's Miracle Network, Medicaid, KCHIP, First Steps (for his therapy), and a long list of other places to help with our medical bills. According to other military families that I've talked to who have already put up a fight to have their baby's plagiocephaly covered they have not won even after going as far as the Congressman. I don't know where to turn at this point. Caleb, our son, needs this treatment but its breaking us at the bank. If there is anyone at all that has information that could help me get the medical bills covered, I'd be so grateful. I'm hoping someone will know of grants for military children or anything. I have heard AER gives medical grants, but they won't talk to me till I have a POA in hand. The US Embassy in Guatemala kept my original POA, and for Dave, my dh, to get a new one in Iraq he has to get permission to fly to another base to be able to get a new POA which is dangerous and he probably won't get the permission to do that. He's going to try, but said it may be something he'll have to look into doing himself at AER after he comes home for his 2 week leave in June or July. If you've managed to read the whole message, I thank you, and if you have information that could help me I doubly thank you. Here's a couple pictures of our baby boy that I love so dearly. He's the absolute joy of my life, and he thanks you too for helping mommy find some help to pay for the medical bills. Thank you so much for any information! Karen