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A Survey for Adult Adoptees and Adoptive Parents about Their Interest in Genetic Counseling Services (Research Study)
I am a genetic counseling student at Boston University School of Medicine. I am conducting a research study surveying adult adoptees and adoptive parents about their interests in genetic counseling services.
Genetic counseling involves collecting a detailed family history to confirm or discuss the chance of inheriting a health condition. When the birth family history is unknown, this cannot be performed which may make it hard to provide all genetic services to adoptees and their families.
As genetic counseling is a new and growing field, we are looking for ways to improve it and extend its availability to all communities. Through this survey, I would like to learn if adoptees and adoptive parents might use genetic counseling and in what situations.
If you are an adoptive parent or adoptee at least 18 years of age, please fill out an online survey at:
[url=http://people.bu.edu/leannb]Assessing the Interests In and Perceptions of Genetic Counseling Services within the Adoption Community[/url]
- Only one adoptive parent per family should complete the survey.
- Participation is voluntary. All responses are anonymous.
If you have any questions or concerns, would like more information, or would like a paper survey to be mailed to you please feel free to contact the researcher, Leann Bartomioli, at leannb@bu.edu or MaryAnn Whalen, at maryann@bu.edu.
Thank you for your help!