Meeting with caseworker

Wow... I've been there and done that for 20 years till my little one past away on Nov 30th 2005. My heart breaks for each and every one of these babies, these kids. Is it overwhelming.... more than you can even begin to imagine!!! That is simply the truth... our little one was my sister, who my mother adopted at birth. I was 18 at the time and she was always my little girl, so I lived at home to help take care of her till she died. We were four women taking care of one child... I have 2 other sisters that were always there helping, and still it was overwhelming. What you don't realize is that it isn't the total lack of privacy with nurses there 24/7, who rob you at the first opportunity, its when there are no nurses and its only you and your little one is having a rough night, and your scared to death on your own... its your heart breaking piece by piece as you watch her suffer day in and day out.... what you don't realize and few people do is that you are overwhelmed and you will cry rivers of tears, but not for yourself but for the little one who is enduring a living hell with no possible cure. We had it all cerebral palsy, seizures, traech, gt tube feedings, the works... as a baby it was much easier, but as 6,7,8 came along, 12, 13, 15.... it became harder and harder... I remember so many days and nights at MCH in ICU, and I would stare into her beautiful blue eyes and know how tired she was of struggling just to breath... I would look at her and tell her that I know she has done everything she could to hang on, and its ok to let go... that I love her and will miss her more than anything in this world but it was ok to let go, to finally be free of the body that had made her a prisoner for so many years... you absolutely can't imagine. I gave all I could to someone who deserved it so so much... I have no regrets, and I have beautiful memories, but it does take years off your life... My mother looks twice her age now, yet I wrote her a poem one year from our little girl for mothers day and had it framed that read: I was placed upon this earth without a whole heck of a lot.... I never learned to walk or talk I need care around the clock... I wasn't born with health or wealth these gifts I cannot claim... My special gift from God is mom... My only claim to fame! Maybe, just maybe you are someone's special gift from God... If you need advise, if you just want someone to vent to, remember there are those of us who have already taken the path you are embarking upon, and are here to listen.