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My bio son has special needs and has always had private duty nursing. He qualifies for 16 hours a day, 7 days a week but we have never used that much. Our new STBAS has 16 hours a day, 7 days a week and his GAL really wants all of those hours staffed and used.
I dont know why I am having such a hard time with it but I feel so guilty about having this much nursing. I keep thinking how much it is costing and how most of what those nurses are doing is just basic kid care, not medical. I feel incredibly guilty for working and not being a stay-at-home mom. It didnҒt help that this week Mickeys case worker emailed me with a ғrandom question asking who takes care of him in the afternoons after school. I figured she would know it was his private nurse. It just made me feel like I was supposed to be there. Uggg. The other thing is that I feel like every little move I make is being watched and questioned. I really cherish those quiet times where we can all just relax and be us without an audience.
I am also in the middle of negotiating the subsidy level Mickey is at. Again, it just feels so wrong. I donԒt want to push things too far but also dont want them to under classify him and that affect his future.
So do you guys ever have these feelings? How do you get past them?
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It sounds like maybe they are wanting to document the nursing hours to help get the subsidy level negotiated. Dont feel guilty about that, you deserve the peace of mind in knowing you will be able to get any help your little guy will need in the future. And, of course, once the adoption is finalized you can drop the nursing hours to whatever you are comfortable with.
On a side note, as a mom of special kiddos I understand not wanting to push the classification thing. I dont want anyone to look a piece of paper and using that to tell my kidlets what they can or cant do in life.
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