What do you think about disclosing medical and genetic information post-adoption?

I am currently writing a research paper on adoption. Specifically on the importance of disclosing medical and genetic conditions post-adoption. The information would be non-identifying and the process would work both ways. What are your thoughts and feelings about updating either the agency or adoptive parents (depending on whether there is an open or closed adoption) about information you find out about family medical or genetic conditions after the adoption is final? Thank you!