Cerebral Palsy: Child to Adult

For the last 18 years many days we were spent not sure if we last to the end, many tears, lost sleep, smiles, sweat, loss, laughter, determination, a LOT of success, made all those appointments, did all the therapy, wore the braces, eye patches, glasses, prone boards, physiotherapy, occupational therapy, speech therapy, hydro therapy, walkers, wheelchairs, ramps, advocacy, independence, battling the school district, transportation.FINALLY celebration....working towards independence and GRADUATION!!!! And YES, he has a date for prom!!!! His personal designed piece of graduation jewellery has arrived, photos are on order, tux fitted, party planning underway, itŒs been going GREAT!!!!! My son will be among a select few that have graduated high school in my family (I myself did not, I was pregnant, so yaall can imagine҅.Im just beaming ;)):banana: :banana: :banana: . But the celebration has been under damper҅..my phone is ringing off the hook and registered letters arriving non-stop. Basically, thay are all as follows, WARNING..your child will no longer be eligible for our services within the next 6 months, he will be an adultŅ..thus no longer a child. He will need to find other service providers under the adult program. New service providers must be located and referred to via your General Practitioner, and will likely have a waiting list. Also, any of the assistive devices your child has must be returned A.S.A.P. Please be advised that the many services that your child has had special approval for (due to the appeal process you have exercised successfully within our guidelines) may not be available through the adult program as the guidelines are different for adults and the appeal process may not be as flexible. And then.get thisŅ.It has been a pleasure to work with you and your family (liars, ya hated to se me coming) in meeting the needs of your child within the departments guidelines... To be fair 3 or 4 representatives excelled in their profession IMO, funny they always got transferred to other clients???? Go figure! Hahahahaha!!! BlalalaBlalalhaBaha! Whomp, whomp, whomp!! Up your department!!! Enjoy your union pay! I think weҒre getting the `good riddens` letters?? As if I was not expecting itcome on now, and donŒt think Im not glad to get rid of your departments as well. I am a bit tired of making yaҒll look like fools. Cant even look me in the eye҅shame, shame! Really thou, it kinda sucks.itŒs like a whole new world.I fought so hardŅmade new rules, broke caseworker inŅ..nowno longer can speak on his behalfŅ..he is an adult.yikesŅ.. Let me say right here and now that I could not believe in this young man any stronger, He can do it, I know he can, he knows he can. But it is scary for many reasons but mostly because it is different. This transition into adulthoodŅas much as I thought I was prepared to loosen the reignshummmmm!:eek: Right now I have not been sharing a lot of the œwarnings with my son because I believe he deserves to celebrate his prom and graduation without having to worry about all the other crap. Truth is his health will not deteriorate during this transition period. So I am of the WHATEVER belief at this point. Just because the calendar indicates that my son is an adult it does not tame my mother bear instincts. Right??? Applications are submitted under either child programs or adult programs but most ALWAYS (exercising or not the appeal process) are approved based on MAMMAS program. :cowboy: We will find a way! Some family and friend (even after all these years) will roll their eye balls at me, wonder why I never let up, think that my son is an now ғadult I can let go a bitԅ..ummm just cause the calendar says XXX does not mean he can get a shower, shave his face, put his socks on. :hissy: Anybody BTDT ???? How do you make the transition from childrens programs to adult programs smoooooother??? Thanks in advance :thanks: