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We're in Allegheny County- Pittsburgh, PA. Our goal will soon be changed from Fit and Willing Relative to Adoption for a sibling group of 3.
The youngest is almost 5 and has Hep C. She is asymptomatic (the majority of children are) but we have concerns about liver function, cancer, transplants etc.
I've been researching adoption subsidies, but haven't found anything about Hep C specifically. She is at the foster care basic rate. They've been with us for three years.
Does anyone have any experience with this?
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I have no answer on the subsidy but treatment and cure for some people has taken a giant step forward in the last couple of months. I am sure they have not tested on children yet but it is something to consider keeping and eye on and talking to your doctor about because it could work for your child. [url=http://online.wsj.com/article/SB10001424052702304520804576341360310326064.html]New Hepatitis C Drug Approved - WSJ.com[/url] Kind regards,Dickons
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You should get a medical card with your subsidy, so check prior to beginning your negotiation to see specifically what Medicaid (or whatever your state calls it) will cover, and then see about adding in some sort of stipulation or request for additional coverage. You'll have to document all that you ask for, though, so you'd need to get your pediatrician and any specialists to help you figure out what you'd need and how to document that. Requesting something with your adoption subsidy doesn't mean you'll get it. I never negotiated aggressively for my kids' subsidies; we ended up with the basic-est of the basic rates for each of them. It's ok, and we do have medical coverage, BUT...sigh. If I'd been less timid I could have gotten more and we wouldn't have to finagle and scrimp to try to figure out ways to get the 'extras' that the kids need that aren't covered by their state insurance.
Hopefully someone will post who negotiated aggressively for their subsidy and can give you pointers.