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my 7 month old niece was diagnosed with infantile spasms last week. she's actually doing better-seizures seem controlled on high dose prednisone and vit B6.
she seems very restless at night, esp falling asleep. sounds like reasonable side effects possibly to both meds.
QUESTION: does anyone have any practical advice on how to soothe her?
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I'm not sure there is much you can do. Its really a side effect of prednisone. If this is a long term thing, she will probably the med switched to something else for the seizures (prednisone is not a seizure med). Seizure meds tend to make folks drowsy. Assuming its a short term thing, my best advice would be to not try to make her sleep a normal schedule. She is probably also extra hungry. Maybe work on self feeding activities at night.
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