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What does that mean?? Physical? Mental? Anything?
The only specifics we have in that category is that he has some stiffness and possible fine motor issues. Each piece of information/form we have received has said something different. This latest one has the most specific information but doesn't mention fine motor issues at all. Other things we'd been told point to possible sensory issues, but none of that is mentioned on the main form either. He is in PT, OT and has a pediatric neurologist.
He's only 13 months. Is there any way to know if his delays are purely physical or if there are other issues as well?
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Developmental delay is when a child consistently doesn't meet developmental milestones in 'normal' time frames. In my experience, having a pediatric neurologist, PT, OT, and stiffness makes me think there are possible concerns for cerebral palsy. However, that doesn't mean there couldn't be more than one thing going on. I would be paying attention more to the totality of the information than what is on each individual form. It's not uncommon for different providers to pay attention to different aspects of the child and child's development and not address all areas.
If he's been getting OT and PT, it's also possible that he's made progress towards fine motor issues and that's why it wasn't mentioned. The evaluator's frame of reference can also be reflected in the forms. We had a speech eval done for our soon to be 3 year old a while back. He did test as having a delay, but because it wasn't significant enough for Medicaid to cover treatment, he wasn't given the diagnosis.
If at all possible, talk to the therapists and neurologists and get their perspectives. There is so much that may not be evident at 13 months old and there is also so much that could be prevented if he is getting proper treatment. It's the beauty and curse of how critical of a time in development the first few years are.
Yes, he has a pediatric neurologist too. The doctors are named in the form so I'm wondering if it's okay to contact them. I'll have to ask my licensing worker about that....Just realized that the latest form mentions NOTHING about possible sensory issues. And I'd posted about some of his other symptoms as initially reported elsewhere, and people came up with autism, SPD/SID, etc. So now we throw CP into the mix... Off to do MORE reading!This whole scene is crazy. I knew it going in, but it's just so much more than I ever realized.
My AD has CP. Hers thankfully is mild. She is able to walk, but as an infant even her neurologist that she'd be more impaired. No one really knows till they're older. She's 5 and up until last year had the label of developmentally delayed. She's reading on a 1st grade level. Who knew? She also has a lot of sensory issues. Very defensive. I think it's probably linked to the CP/neurological issues. She does have a lot of feeding issues.
Wow, thanks for chiming in. CP is something that I've always been aware of (read a book as a kid and it stuck with me) and still never considered having to anticipate in a diagnosis for a child. With SO many things that can happen, CP never came onto our radar. I'm trying so hard not to be blindsided, b/c I know that whatever happens, even if in the future, DH will likely be shocked and one of us will have to have a clear head...
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Typing on Kindle. Forgive mistakes. Our current LO has developmental delays, OT, PT, and a pediatrics neurologist. She has unexplained left side weakness and lownmuscle tone amongnother things but CP has never been mentioned. It could be a physical manifestation with a neurological cause or the effects of neglect causing the delay. Whilenour LO seems to run 5months behind we are seeing advances and improvements everyday. We haven't been lucky enough tonhave access to the neuron info but have managed to talk directly with the doctor about concerns. It is with a shot to give them a call. Good luck!!!!