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We have been chosen as the "lead" family to adopt a boy who is 19 months old who is suspected of having Angelman's Syndrome by his geneticist.
My nephew has these same symptoms of what I read on the web about it, but he is undiagnosed at this time.
Just wondering if there is anyone here who is familiar with it or knows of any support groups in Tx for it.
Thanks,
Dumbledore
Bio-mom to dd, C-12
Hoping to soon adopt
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I am the "companion" for a 6 yo girl at my church with Angelman's.... the biggest thing was overcoming her frustration at her inability to communicate effectively. She would take matters into her own hands and not trust adults to understand her. In about a yr and a half, I have seenher go from almost totally autistic traits, to developmentally delayed... she can color now (scribbles) but she enjoys it and recognizes when her picture is "done". She does some signing, but uses a "pex book" with picture cards better. Her big thing is playing in water, swinging and the feel of ANYTHING in her mouth. She is starting to be concious of herself (wipes drool) and that is HUGE! Still in diapers and that's a problem (none her size). She is totally lovey dovey but demands CONSTANT attention. She has no sense of judgement...think decision making capabilities of a 2 yr old...with the size and problem solving skills (can figure out locks etc..) of a 6 yr old.
Prepare your 12 yr old for being your "assistant", she will have a rough time adjusting to a sibling (an only child thus far), especially one that will be so demanding of your time.
A new threapy technique I am anxious to try with T is called Dynamic Listening. A friend of mine is using it with her daughter, and I have heard of it being used with autistic children to great success. Since Angelman's is similar, I can guess it may help with that too. Especially the non-verbal part.
Lemme know if you have anymore questions and if I don't know, I'll ask t's parents!