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So did three different doses of Adderall, then went to concerta. Concerta was worse, she hated me. Terrible outburst of temper. Last Sun. I was letting her pick the resteraunt and she couldn't remember the name. Her original therapist said she had sensory disorder and emotional deregulation. I'm not even sure she has ADD, more likely some ADD and a combination of several others. However, I'm not sure if it is even that bad compared to other kids.
I wish we had known there could be this many problems taking this medicine etc. She goes back to school next week and we took her off everything. She can't be this messed up the 1st couple of weeks at school. The doctor is saying no more stimulant and the next one he will try will make her sleepy as a side effect. I don't know what to think. I know our daughter has trouble listening, problems with focus, gets up during meals, so basically lots of the symptoms but like the teacher said 80% of the time she is fine. So far none of the medicine she had been on or I heard about is worth that 20%. You figure most kids have issues probably 10%. I sure wouldn't put her on this for behavior because mostly she isn't that bad. The only reason I would do it is to make learning easier. However, I'm not so sure about any of this. Maybe she just isn't that smart with some subjects, can't do it and get frustrated.
Anyway the plan is for her to be off everything, wait and see in school when she has a length of time with her new teacher, then revisit if necessary. I just really didn't like seeing my daughter so unhappy and I was afraid to let her around other kids or she would have no friends the way she was acting on that medicine.
What have I learned from this? Make sure you have plenty of time to try all these medicine when it won't make any difference if your child is downright scary acting on them, not to fall for the happy hype of the drug company adds that it will fix everything with a pill, make sure your child has enough issues that it outweighs the side effects and make sure your child doesn't have other issues that could be effected negatively by speed because it was a frightening thing to see our child on drugs. It is one of my biggest fears for the future but I didn't expect to looked into her eyes and see a drugged up look now. I'm just glad her doctor has been very supportive and listened to us without being patronizing. Had a lot of that lately.
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My AS (almost 5) had what I thought was ADHD. After a visit with our psychiatric nurse he was diagnosed with disruptive emotional disregulation. He sounds a lot like your child. Crazy wild most of the time except when he was tantruming. But there were times when he seemed so normal. Eventually he'll probably be labeled bipolar, but he's too young right now. After one dose of abilify, we have a different child. He's able to listen and make better choices. We've not had one tantrum and its been almost 2 weeks. If I knew it would make this much difference I would have checked into medication sooner. We kept assuming it was because of his history and that he'd outgrow it.
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That is the problem with all this, our daughter isn't that bad. We took her roller skating Sat. and my friend and I were watching her. She was out on the floor just skating and doing the chicken dance having the best time. There was none of that when she was on the medicine. I look at the other kids at school and most of them have more issues. The only real issue I see is she has a hard time with things that require mental effort, like more complex math and reading. She wants to guess and get the answer. I'm not so sure it isn't just her IQ, stubborn and getting upset when she doesn't understand something. I'm always a person that wants to fix things and do something. This time I'm just going to wait and see instead. I know she has some other issues but I'm not sure they are that bad to mess with her brain chemistry over.
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