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DJ, who just turned 5, recently went through a developmental assessment with a developmental neuropsychologist. The upshot was "emotional dysregulation" - which from what I've read, does seem to fit. He has emotional responses to things that are way out of proportion to the event, he tends to get anxious about things, he is quick to anger and he seems unable to modulate his reactions. Yesterday, for example, I arrived to pick him up at school when he was just starting to read a story to his friend. So he got really upset and cracked me in the shins. In the heat of the moment, he is all reaction and it takes awhile for him to cool down.The recommendation was therapy - initially for us to help us learn how to work with him, and then when he's older, for him. I went for an initial appointment with a therapist yesterday who specializes in kids DJ's age and a lot of her practice is with adopted kids who have an early history of trauma or neglect - or, as in DJ's case, prenatal drug exposure. She wants to observe him at school, have a session each with my partner and I playing with DJ and then some sessions with DJ alone. She may recommend play therapy with him as well as working with us.I'd love to hear from parents who have young children in therapy. How helpful has it been? Are there particular things you look for in a therapist? How much does the therapist work with your child and how much does the therapist work with YOU to help you with strategies for parenting your child?
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For me, I had to find a therapist who was a good fit for me. With my parenting philosophy, with my style, with what I needed from a therapist. There is a wide range and because I was a therapist (in a former life, pre-kids), I didn't want to deal with some 20-something just out of grad school - I WAS that therapist and I realize now that I didn't know jack diddly.
We found a good therapist and therapy was moderately helpful. For our sessions, probably 40% of the value was having someone who understood my frustrations and validated my concerns and could brainstorm different approaches with me, 30% of the value was having someone else talk to my DH about what my DD needs, and 30% was getting an outsider to look at and use different words to talk to my DD. She was also able to do work with DD on her birthfamily that I wouldn't have thought that DD was ready for and set the ground work for future work along those lines for DD.
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Okay, guys. What I wanted you to tell me was that therapy was an amazing thing for your kids and they are doing great now . . . :arrow: Okay. So, no quick fix. At this point, though, I'll take moderately helpful. Even having a knowledgeable person to brainstorm with would be a relief.
Minibus - I can totally see that. I've seen 3 different therapists now, and it was only the last one that made me think she was someone I could really work with. She asked what seemed like very knowledgeable questions, specifically asked about things like boundary issues that are related to emotional dysregulation (and are an issue for DJ) that I would not have connected and was able to give me a general picture of how therapy might go for him and how she would get started with our family. The first two seemed to want me to walk them through what we needed when I'm looking for someone who knows enough to give me some guidance.
She also seemed able to grasp a good picture of DJ in all of his wonderful complexity - sensory issues, highly gifted and wildly asynchronous. As the NeuroPsych said, "He will be a very interesting and challenging child to raise."
OakShannon
So Jen, do you feel that with your son, therapy was not really helpful? Or was that what helped him get a handle on the anxiety? What kind of medication helps with this?
That is really my fear. It's one thing to deal with a kicking screaming tantrum in a child who is only 3.5 feet tall and 42 pounds. It's quite another when the raging child is taller than you are. At this point, I can bear-hug DJ when he really loses it and calm him down. I would say we have a total meltdown, complete with trying to scratch, kick, hit and bite about once a week. And smaller incidents (like him kicking me in the shins yesterday) almost daily. Which is a significant improvement over where he was as a 3-year-old. But it's harder the bigger he gets. I seem to get the brunt of his rages. I think this is actually because I'm the person he feels safest with, but I'm also a small person and he's getting to where he can really hurt.
OakShannon
Okay, guys. What I wanted you to tell me was that therapy was an amazing thing for your kids and they are doing great now
Tell me lies . . . Tell me sweet little lies. (Tell me, tell me lies!) :p
Sorry. I had a little Fleetwood Mac moment. Thanks for the good luck wishes!
I don't want to start with medication. But I do think this is neurological more than behavioral. So we'll see how it goes over time, I guess. You description sounds a bit like DJ, Jen. Often wonderful. Pretty regularly challenging. And occasionally, just plain out of control. And when he's a teenager - especially an African American teenaged boy - those kinds of rages would have the potential for some scary consequences.
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OakShannon
You description sounds a bit like DJ, Jen. Often wonderful. Pretty regularly challenging. And occasionally, just plain out of control. And when he's a teenager - especially an African American teenaged boy - those kinds of rages would have the potential for some scary consequences.
My son is only 5 and will be 6 in March. He threw fits over the smallest things. One time I told him not to eat the bubbles and he cried for 20 minutes. He obsessed a lot and would not let us snuggle him or do much hugging him. He started taking respirdal at 4 and we started play therapy. We did it for a couple of months and because he was becoming stable with the meds and it was an hour and half drive to the doctor we stopped going. I cannot think of what kind of therapy it was called but it was a specific method. It was about giving him the control during the play therapy time. We just stopped with the respirdal and all he takes is an ADHD med and the teachers at school do not see the emotional or obsessive behaviors that we saw when he was little. We don't see them as much either. He is just really HYPER at school. He is still moody at time and will go through phases were he is hard to be around but other time he is great and easy to get along with.
So I guess I'll be the one to lie to you....or give a different train of thought. My little boy is 6-8ish months younger than DJ but reading your posts always reminds me of my guy. We also work with emotional dysregulation. We started OT for his sensory issues about 5 months ago and honestly he is a different child. I will admit we have an amazing OT and she has worked with him, and taught us how to work with him when we sense a meltdown and after meltdowns. We also work on strategies for when he feels upset when he is perfectly calm. We see meltdowns less than once a month and we were dealing with them at least daily. He use to get agressive (like pulling hair or hitting me or his sister) more often than the meltdowns and we haven't had any agression for several weeks. We do a lot of work with him outside of OT but we have seen results we never anticipated when we started treating the SPD. Is it perfect? No. Does he still have emotional dysregulation? I would say definitely yes but now he recognizes it and is learning to manage it himself. Is therapy a cure all? No. Is it a quick fix? No. But DJ is smart and I think with the right therapist you will be amazed at how much improvement you will see. Everyone responds to things differently but for us the OT has been invaluable.
Thanks. This gives me some good food for thought. I'm still wrapping my head around what "emotional dysregulation" means and how it fits in with the SPD and just plain temperament. I suspect that DJ would have been an intense kid anyway. It's just so much a part of who he is. So we'll see how this goes. I'm not someone who is going to absolutely rule out medication. If that turns out to be what he needs, we'll do it. But we'll see how therapy goes, first. Hopefully it will work for him as well as it does for your son lovin - that's nice to hear.Ladyinred - We really see the moodiness. DJ "grumps" around the house often after school. My theory is that he works so hard at trying to hold it together at school, that he's just cranky when he gets home. He goes on and on about how this person teased him and that person isn't his friend anymore and his teacher is mean . . . I think he's just venting to blow off steam because a lot of what he says isn't really true. It's when he's raging after school that I know things are really getting bad - even when his teachers aren't seeing a change. It's hard because he is SO verbal and SO independent that people expect him to really have his act together. He just can't live up to that. I have a hard time getting them to see that their discipline standards are really not realistic for him. He's not seeking attention (which is what his teacher tells me). He really can't do it without help. I'm so apprehensive about kindergarten next year. He's not going to be an easy kid to teach. At this point, we're figuring that we'll need to spend some of his college fund on therapy and private schools now in the hopes that as he matures, he'll be able to handle things better. This stuff is way above what a teacher's salary will pay for, which is incredibly stressful in and of itself. But what can we do? Jen - The wonderful thing is that I have 2 friends who have sons that are A LOT like DJ. It's just worked out that way. We've known each other since our boys were babies. But they all have similar histories and we are all at similar stages of just getting evaluations and recommendations, therapy and medications. It's an automatic support group! Not exactly BTDT, but at least I know it's not just us!
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OakShannon
I'm so apprehensive about kindergarten next year. He's not going to be an easy kid to teach. At this point, we're figuring that we'll need to spend some of his college fund on therapy and private schools now in the hopes that as he matures, he'll be able to handle things better. This stuff is way above what a teacher's salary will pay for, which is incredibly stressful in and of itself. But what can we do?
Makes sense to me. With kids like ours, why mess with something that's working? If DJ's Montessori school was a great fit for him, I'd jump at it. They do go up through kindergarten. As it is, DJ has always had ups and downs at his school. In some ways it fits him well, but in other ways . . . Oy. The schools we are looking at have class sizes of 15 - 16 with 2 teachers. I think he's really going to need something like that. He's going to need a completely adapted curriculum and a teacher who is very patient. Push comes to shove and I may end up homeschooling him.
I will say that you should make those choices carefully. I knew - deep down - that my son would not survive in a large class, and I was absolutely right. Every pre-conceived notion I have had about education, I have tossed :)I ended up home schooling him grades 3,4,5 and 6 and then transitioned him into a small private school into a 6/7 split class that hired me as the Teacher's Aide. :) He has continued all the way through high school at that same private school (for comparison sake, my son a year older and son a year younger are both attending public high schools). We have found an excellent tutor, a wonderful school and understands his quirks (over time) and a supportive staff that listen to us. If you can nurture that type of educational environment for your "tougher" kids - I strongly encourage it. And you need to be prepared that typical school environments may not be supportive for atypical kids.
Jen and I have been on similar journeys for many years. Don't discount medication right away when you are looking at emotional disreg. Medication can help put a child in a position where he can learn techniques to manage the moods/emotions. Without meds, the emotions/meds may be too explosive to be receptive to learning. I have three boys between 12 and 17, two of which have/had similar issues. The learning and coping phases didn't begin until the moods could be stabilized.
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At 5, doing therapy without you participating is pointless, in my opinion. You might look into theraplay. Doing sessions with you might be helpful and if it's a good therapist with lots of adoption experience, he/she might be able to give you good incite on things you might do at home to help your son.
Lucy, I think that's the idea with this therapist. Initially, the suggestion from the neuropsychologist was to have US work with a therapist on ways to help DJ. I think the therapist we are going to see wants to work with the whole family - DJ included. The 3 sessions with him alone are part of an evaluation process.